I'm taking this one on faith because it has the ring of truth to it.
Hopefully publicizing it will expose the abuse and neglect in Oregon that hides behind the smokescreen of Oregon's advocacy of euthanasia
I've left out the names and other contact information from the original post.
What I've written here is a true story that must be told. There are people who have gone to great lengths to suppress the information herein. What I
hope to do is compel those reading it to join with me in demanding
accountability from the responsible parties. An investigation
independent of Oregon's Protection and Advocacy agency is needed to
decide exactly who the responsible parties are.In early April 2006 I found out that a close friend of mine had stage
3 colon cancer. She had a profound developmental disability and was
non-verbal. In order for critical health care decisions to be made on
her behalf, she needed representatives who knew and cared about her to
gather and interpret medical information and weigh all her options. An
Advocacy Team was assembled including myself, two other staff members
from her day program (who knew her well), and her Individual Service
Plan (ISP) team. This consisted of a management staff representative
of the day program provider (who saw her a few times a year), the
owner of her foster home (who supervised her direct caregiver) and a
county case manager (who was assigned my friend a few months earlier,
and didn't know her). A close friend of the day program representative
was brought on board to act as health care representative (who didn't
know my friend prior to her diagnosis). We all met and decided that
the case manager would look into what was covered under her health
plan, the health care representative would get the medical record and
a 2nd opinion. She committed to providing these documents to the team
as soon as she got them. I said that I would look into treatment
options. Without any of this being accomplished, other than the
information I shared about diet and exercise being critical, she was
placed in hospice about two weeks later.
Continued at Marlowe's Shade
